Finally - some time longer than the 21 days it was supposed to take - I got my patient file yesterday.
Well approximately half it - there are some huge gaps in there and there are some double ups that even the most incompetent admin person should have seen I would have thought (one specialist letter was forwarded to four different staff with a note that "from recent visit to ****** on ****." I got that five times). A somewhat condescending letter from a few months ago advising me that should I be aggrieved with my treatment I could seek a second opinion privately from (person named) as they are sure their opinion would be similar but I should note that this will cost several hundred dollars, is missing. All information on the 30 odd CT scans I have had is omitted - apart from about 10 notes referring me for the same CTs
Some file alteration has also occurred. (I'm blessed with a photographic memory and have no problem recalling actual sentences from previous - I had also noted them in my own diary.) I must admit that some of it was downright untruths and should be amended and the rest was probably unacceptable comment. But if they told me a lie and wrote it on the file it should stay there.
I have requested the rest of the file. Reading to date indicates that a lot of thoughts uttered by individual medical persons without any proof have become gospel without any further investigation. I would suspect the person that stated these thoughts wasn't particularly sure of their ground as so called 'givens' first show up in the notes in sentences like "It is possible that..." or "in similar cases it was found that.... can occur" Much of this stuff has never been shared with me.
I lack the necessary couple of hundred thousand required to sort this out privately so guess I have to persist with the public health system. I am just not sure what the next move is. There is an answer out there, I need to get out of the care of those who can't see it.
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